Oh, @puravidaville - I feel for your plight, and @dandays, you're a bonefide sweetheart to do this for her.
I wish I had some clear-cut and easy answers, but unfortunately I don't. I've had my own bouts of wishing I could get an appointment with Dr. Gregory House, and I'm actually overdue for scheduling a bunch of visits with specialists.
However, I did want to mention that one of the things I discovered very late in the game (like only 4 or 5 years ago) is that I had some extreme deficiencies - Vitamin D and Iron being the biggest issues. I've never been the world's healthiest eater, but I'd always made a point to take some supplements, including iron and D, but I wasn't keeping up with my body's demands.
Long story short (and yeah, this is the Reader's Digest version...lol), after about six months of mega doses of the two, I stopped walking like a ninety year old woman and felt human again. I also discovered the cute little quirk I'd developed over the years of craving ice was actually Pica, and once my iron level stabilized, it went away.
Given all the health and mental issues I'd had over the years (not to mention fairly frequent lab work), it boggles my mind that it took so long for a doctor to notice. In fact my doc said that back in the day, someone with iron as low as mine was, would've been hospitalized and transfused immediately. Fun stuff.
If it's okay with the both of you, I'd like to add Puradays name and health concern to a "Healing & Blessing Request" post in a FB witchy group I belong to. I figure any kind of good juju can't hurt, and maybe someone in the community of about 22k people will recognize the symptoms, or be able to offer some insight.
Speaking of, sending lots of good juju and wishes that you get answers soon. Brightest of blessings to you both.